iacfsme.org

International Association for Chronic Fatigue Syndrome / Myalgic Encephalomyelitis or iacfsme for short is a foundation dedicated to doing research on Chronic Fatigue Syndrome. They are champions of everything that we also fight for, so send them some love, the same one that we are getting from you.

post-polio.org

post-polio.org is community backed website which has a lot of useful information about the Post Polio Syndrome. Their website has a neat “Education” category where you can find a lot of useful information about the Post Polio Syndrome and how it might affect you without you even noticing.

ngwrc.org

Even though ngwrc.org isn’t a website dedicated entirely to those who suffer from the Gulf War Syndrome, there are many resources available there that can help veterans find the right institution dedicated to helping Gulf War veterans, where they can seek help. Check them out if you are a veteran and not sure about your situation.

About us

CSSA stands for Chronic Syndrome Sufferers Association. We’re a non-profit that tries to make the voices of those who are affected with chronic pain syndromes heard in todays world, which is all to eager in dismissing chronic syndromes as non-existent. As I have already said this elsewhere on the website, CSSA membership would love that the conditions which trouble us aren’t real, but they are real for us, too real actually.

We already discussed in great detail about what the goals of CSSA are. My name is Clair Flores and I’m the head of operations here at CSSA. Our memberships is in the hundreds at this point and this number is increasing every year. Not sure if that is a good, or a bad thing. CSSA main office is located on the east coast, New York to be more precise. That’s where I’m at.

Clair Flores, head of operations
CSSA – Chronic Syndrome Sufferers Association
1487 Redbud Drive
Huntington, NY 11743

Meetings take place ever Tuesday and Thursday, at 20PM at the address above. Make sure that you contact me about coming to a meeting first, so that we can make sure there’s room for everyone. We need to make sure there’s enough seating area, drinks, snacks, there’s safety concerns, etc. Hopefully we see you at the meeting.

Sufferers of a TREATABLE condition – PTHP – are commonly misdiagnosed with #ChronicFatigue Syndrome or #Fibromyalgia https://t.co/RWzwFut2FA Hundreds of thousands of people may be suffering needlessly. Simple diagnosis. #ChronicPain #CFS #cfsme #spoonie #ChronicIllness

— Richard Lowes (@Richard_Lowes) February 5, 2018

MEA Review: The SMILE trial – a lesson in how not to conduct clinical trials in people with ME/CFS @MEAssociation #MEcfs #ME #ChronicFatigueSyndrome #ChronicFatigue #MyalgicE #MyE #MyalgicEncephalomyelitis https://t.co/NFMDw39mVx

— NowsAllThereIs (@AllThereIsNow) January 31, 2018

Exhaustion is the new black. Follow these simple tips to fight off #ChronicFatigue in your everyday routine: https://t.co/6texhRITMS

— UMiami Health System (@UMiamiHealth) January 23, 2018

CSSA has chapter houses in almost every state all up and down the West coast and sporadically throughout the entire continental US. Get in touch with chapter house leaders to find out how you can join meetings and seek membership in the CSSA.

Patrick Simmons

Patrick is the chapter leader for the northwest United States. He currently resides in Oregon, but because of the nature of his work as a traveling salesmen, he spends more time on the road than at home. That makes him perfect for covering a lot of ground and helping cover a large swaths of land for the CSSA. You can get in touch with him by sending a message using the contact page.

Julia Ling

Julia runs our California chapter, but just like Patrick she basically covers the southwest US. California has the highest number of members, so Julia has her hands full with just the sunshine state alone. However she still manages to help out with Nevada and Arizona, where far fewer members exist. Still we are here for everyone and Julia is here for you if you are in the southwest US.

Justin Colbert

Justin works as a paramedic, and he has plenty of experience dealing with chronic pain syndromes. He lives in Nebraska and works in IT. Ever since he was little he was that kid who had asthma, bad posture, wore glasses, and as he was finishing high school he discovered that pain he normally felt isn’t something normal. That’s when he got interested in chronic pain syndrome. He is currently healthy and experiences minimum symptoms. Get in touch with him if you are in central US and you want to hear from him how he managed to overcome chronic pain syndrome. In his spare time Justin loves playing with tech, PCs, smartphones, gaming, video drones, the usual suspects. Justin loves life and he doesn’t think having chronic syndrome means the end.

Claire Flores

Hi there, my name is Claire Flores and I’m the head honcho on the website here and I’m also in charge of the east coast CSSA operations. Everything that you see posted on the website here goes through me. That means that should you come across something incorrect, it’s my fault, and you should yell at me. I also handle the day-to-day operations for the CSSA meetups all up and down the east coast. Get in touch with me if you want to join or come and visit one of our meetings.