The Unify Coalition - Patient Resources

United States

CSSA

The Chronic Syndrome Support Association, Inc.
801 Riverside Drive
Lumberton, NC 28358-4625
E-mail: nsolo@cssa-inc.org http://www.cssa-inc.org

RESCIND, Inc.

9812 Falls Road
Suite #114-270
Potomac , MD 20854
P: (301) 983-5644
Email: RESCINDINC@aol.com
http://www.geocities.com/CapitolHill/4277

Sleep Net

Sleepnet.com - This is the home site of Dr. William C. Dement, M.D., PhD. One of SleepNet's goals is to link all the sleep information located on the internet. As new, non-commercial, sites become available they will be linked here. Send new links to sandman.

Massachusetts CFIDS Association

PO Box 690305
Quincy, MA 02269-0305
(617) 471- 5559
Org. email: webmaster@masscfids.org
http://www.masscfids.org

MCS Referral & Resources

508 Westgate Road
Baltimore MD 21229-2343
Phone: 410-362-6400
Fax 410-362-6401
http://www.mcsrr.org/
Albert Donnay, Executive Director
donnay@mcsrr.org

The CFIDS Association of America

PO Box 220398
Charlotte NC 28222-0398
Phone: 800/442-3437
or 704/365-2343
Fax: 704/365-9755
E-mail: info@cfids.org
Web: www.cfids.org

National Coalition for the Chemically Injured

http://www.rtk.net/ncci

Autoimmune Technologies

Using innovative, proprietary medical research discoveries,
Autoimmune Technologies is developing medical diagnostic tests,
exploring disease mechanisms, and investigating therapies
for autoimmune diseases and other disorders.

Autoimmune Technologies, LLC
144 Elks Place, Suite 1402
New Orleans, Louisiana, 70112
USA
Phone: (504) 529-9944
Fax: (504) 568-0634
E-mail: mailbox@autoimmune.com
Website: http://www.autoimmune.com/index.html

Information about ME

http://members.aol.com/MEwebsite/info.html - This site offers lots of useful information on M.E. and focuses on the difference between M.E. and CFS

http://members.aol.com/RussBME/ - There is a Working Group focusing on M.E. This web site is written by a member of that group, who also has M.E.
Enlightening, informative web site telling us why the working Group is NOT going the way we may be hoping...

U.S. Veteran Information (non-governmental)

http://web.raex.com/~colombo/vets2/index.htm
The men and women of the U.S. Armed Forces deserve help whenever it's needed. The U.S. Veteran Information organization is dedicated to providing information and help wherever possible. On this web site you will find information on Agent Orange, Gulf War Illness, PTSD, Survivor Benefits, How to launch a VA claim, How to obtain unit and personnel records, and more.

The American Pain Foundation

The American Pain Foundation is a nonprofit information resource and patient advocacy organization serving people with pain. Our mission is to improve the quality of life of people with pain by providing practical information for patients, raising public awareness and understanding of pain, and advocating against barriers to effective treatment. We represent exclusively the interests of people who suffer from pain and we fill the need for a grassroots, consumer-driven, patient-focused organization promoting better pain management.

Missouri Arthritis Rehabilitation Research and Training Center

MARRTC - Missouri Arthritis Rehabilitation Research and Training Center - Includes Fibromyalgia Websites, Help Yourself Guide and Patient FAQ's

United Kingdom

ALL-PARTY PARLIAMENTARY GROUP ON M.E.

Chair: Tony Wright MP
Vice Chairs: Paul Burstow MP
Rev Martin Smyth MP
Secretary: Yvette Cooper MP
Treasurer: Christopher Gill MP

Tony Wright's Constituency Office
21 Euston Road
Great Yarmouth
Norfolk, NIUO 1DZ
England
Tel: 01493 332291 (also textphone)
Fax: 01493 332189
e-mail: wrighta@parliament.uk

Westminster Office
House of Commons
London
SW1A 0AA
England
Tel: 0171 2194832
Fax: 0171 219 2304

The reports of the CMO's Working Group are published at http://www.doh.gov.uk/cfs-me.htm

Another link you might like to include for international info is : http://www.cfs.inform.dk

ME Association
4 Corringham Road
Stanford-le-Hope
Essex
SS17 0AH
P: 01375 – 642466

BRAME
30 Winmer Avenue
Winterton-on-Sea
Great Yarmouth
Norfolk
NR29 4BA
England
Phone: 01493-393717
http://ds.dial.pipex.com/comcare/brame/

Action for ME
PO Box 1302
Wells
Somerset
BA5 1YE
P: UK 01749-670799)

The 25% Group
[representing the severely affected]
Simon Lawrence
52 Downfield Street
Tollcross
Glasgow
G32 8RT
P: UK 0141-778-8739)

ForT [Fighting for Truth]
Ms P More
22 Mill End
Kenilworth
West Midlands
CV8 2HP

The Persistent Viral Disease Foundation
4 One Tree Lane
Beaconsfield
Buckinghamshire
HP9 ZBU
P: 01494 674769
http://community-care.oaktree.co.uk/
html/pvdrf.html

U.K. 1999 Working Group Contacts

Judy Sanderson
Room 5W11
Quarry House
Quarry Hill
Leeds, LS2 7UE
P: 0113 254 5207

Judy's assistant:
Mary Simpson
P: 0113 254 5190

(Selected the members of the 1999 Working Group)

The N.H.S. Executive
Dept. of Health
Wellington House
133-155 Waterloo Rd.
London SE1 8UG
P: 0171 972 2000

Tony Wright M.P.
21 Euston Rd.
Great Yarmouth
Norfolk, NR30 1DZ
P: 01493 332291

Prof. Liam Donaldson CMO
Health Department
Room 111
Richmond House
79 Whitehall
LONDON SW1A 2NS
P: 0171 210 5214

Chair of the 1999 Working Group:

Professor Allen Hutchinson
Director of Public Health
The Firth Court
Western Bank
Sheffield University S10

Australia

Dr Mark Donohoe Medical Site Dr. Mark Donohoe is one of Australia's best known medical practitioners, especially in the fields of chronic fatigue syndrome, adverse chemical effects on health, environmental medicine, and complementary medicine (which integrates alternative and orthodox medical practices for the best care of patients).

ME/CFS Syndrome Society of Queensland Inc.
PO Box 938
Fortitude Valley Qld 4006
Enquiries and Information – P: +61 7 3832 9744
Administration – P: +61 7 3832 9755
E-mail: admin@mecfsqld.org.au
Internet: http://www.mecfsqld.org.au/

ME/CFS Society (South Australia) Inc.
PO Box 383
Adelaide SA 5001
P: +61 8 8266 5833
Internet:
http://www.span.com.au/me/index.html

ME/CFS Support Group (Western Australia)
63 Ardleigh Crescent
Hamersley WA 6022
P: +61 8 9448 5162

ME/Chronic Fatigue Syndrome Society of Victoria Inc.
23 Livingstone Close
Burwood Vic 3104
Information and support line:
P: +61 3 9888 8798
Administration/Fax – P/F: +61 3 9888 8991
E-mail: mecfs@vicnet.net.au
Internet: http://avoca.vicnet.net.au/~mecfs/

Northern Rivers ME/CFS/FM Support Association
PO Box 6024
South Lismore NSW 2480
E-mail: nfmecfs@nrg.com.au
Internet:
http://www.nrg.com.au/~nrmecfs/

ACT ME/CFS Society Inc.
PO Box 717
Mawson ACT 2607
P: +61 2 6290 1984
Internet:
http://www.spirit.net.au/~masmith/aus_info/act_cfs.htm

ME/Chronic Fatigue Syndrome Society of New South Wales Inc.
Royal South Sydney Community Health Complex
Joynton Avenue
Zetland NSW 2017
Counselling and Information:
P: +61 2 9439 6026
Administration:
P: +61 2 9662 3488
E-mail: mesoc@zip.com.au
Internet: http://www.zip.com.au/~mesoc/

Patient Resources