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The Chronic Syndrome Support Association, Inc.

Other Sites of Interest and Information


CIND – Overlapping Illnesses
(Chronic Immunological and Neurological Disorders)

 CINDA  The Chronic Immune and Neurological Diseases Association. CINDA developed in early 1999 to address the issues of all 'invisible' illnesses, which include, but are not limited to, CFS/CFIDS, M.E., FM/FMS, GWS and MCS.  CINDA is an Internet-based advocacy organization supporting education and promoting the goals of all invisible illness groups.  CINDA is also proud to offer a full-service Public Relations Department.

The River  CFIDS, GWS and FMS information with many good links.

  Overton Studios Trust, a UK Registered Charity that provides world-wide holistic online and offline production and support for sufferers from Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS), Post Viral Syndrome (PVS), Chronic Fatigue and Immune Deficiency Syndrome (CFIDS) and Fibromyalgia (FM).

ChronicIllnet is the first multimedia information source on the Internet dedicated to chronic illnesses including AIDS, cancer, Persian Gulf War Syndrome, autoimmune diseases, Chronic Fatigue Syndrome, heart disease and neurological diseases. This site speaks to many different people – researchers, patients, laypeople, and physicians, to name a few.

CFS/FMS Information Page  Marilyn K's personal page with lots of great information on CFS and FMS.

The Fibromyalgia/CFS Foothold and the Invisible Chronic Illnesses (ICI) Agora.

Canberra Fibromyalgia & Chronic Fatigue Syndrome Pages  Information, research and advocacy from Moira in Australia for people with Myalgic Encephalopathy: Fibromyalgia, Chronic Fatigue Syndrome, Myalgic Encephalomyelitis etc., and Chronic Pain

About.com's comprehensive Chronic Fatigue Syndrome & Fibromyalgia site, run by a human "Guide" who also suffers from CFS/FMS.  

Chronic Pain, CFS, FMS & Other Medical Resources  Lois Randall's impressive site.

Jerry's FMS/MPS/CFS Page  Personal page with FMS, CMP and CFIDS.

Co-Cure CFS & FMS Information Exchange Page  Just as our mailing list was established with the goal of furthering cooperative efforts towards finding the cure for the illness(es) commonly referred to as Chronic Fatigue Syndrome (CFS) and Fibromyalgia (FMS), this website seeks to do the same by providing CFS and FMS patients, caregivers and advocates with online access to comprehensive information and available resources.

Fibromyalgia: A New Perspective  A personal look at a connection between Fibromyalgia and Attention Deficit Disorder.  Attention Deficit Disorder medications relieve pain and improve other endocrine functions in many Fibromyalgia patients.

Immune Mailing List  The home page of the mailing list sponsored by MCS Referral & Resources for people with CFIDS, Candida, lupus, FMS, EBV, multiple allergies, environmental illness, MCS, etc.

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Fibromyalgia Syndrome/
Chronic Myofascial Pain

Fibromyalgia & Chronic Myofascial Pain Syndrome  Devin Starlanyl, Author of "The Fibromyalgia Advocate: Getting the Support You Need to Cope with Fibromyalgia"  and "Fibromyalgia and Chronic Myofascial Pain Syndrome: A Survival Manual" with Mary Ellen Copeland M.S., M.A., offers a wealth of information on Fibromyalgia and CMP.  It has invaluable information for both the patient and the professional health care giver.

Devin Starlanyl Care Provider's List  Some of these doctors are knowledgeable in the fields of FMS and CMP.  Some are simply willing to listen and support their patients.  This information comes from many sources.  This list is an attempt to help people find doctors and other health care providers and supporters who have other FMS and/or CMP patients whom they have cared for in an appropriate and kindly manner.  Any patients might have a bad experience with one doctor.  We hope this list will grow, as we believe that everyone has a right to competent health care.

Fibromyalgia Community   Information on private e-mail discussion group list service for Fibromyalgia along with other very valuable information and excellent links (with very up to date information)  Don't miss it.

 MARRTC  Missouri Arthritis Rehabilitation Research and Training Center.  Includes Fibromyalgia websites, Help Yourself Guide and Patient FAQ's.

 DrLowe.com  Our website is about "metabolic health" We define metabolic health in this way: A state in which the chemical processes in our cells are sufficient to provide us with at least two things: (1) resistance to sickness and disease, and (2) the vigor, stamina, and well-being needed to fully engage in all aspects of life. At drlowe.com, we focus on what impairs metabolic health, how to recover it, and how to optimize it. 

 Fibromyalgia.com  An information resource for anyone who suffers from or is interested in "The Fibro Five": Fibromyalgia, Interstitial Cystitis, Chronic Fatigue, Migraine Headache, Irritable Bowel.  We are a support network and credible source of validated information, a sounding board for controversial or emerging treatments of promise, and a referral source to physicians and care practitioners that believe in and skillfully treat patients suffering from "The Fibro-5."

Fibromyalgia Chat Rooms  Site created by members of Fibrom-L; drop in anytime to chat on FMS; FMS and weight gain; FMS persons who are Single & Self Supporting.

FMS Survivors  Personal page with good information and beautiful photography.

Oregon FMS Foundation  New Exercise Video produced by Dr. Sharon Clark, as well as an overview of FMS and an explanation of pain generation in fibromyalgia by Prof. Robert Bennett.

Living With Fibromyalgia  A personal page of how to live with chronic syndromes.

National Fibromyalgia Research Association  The National Fibromyalgia Research Association (NFRA) is a fibromyalgia syndrome (FMS) activist organization in Salem, Oregon. Our mission statement is: "Dedicated to education, treatment and finding a cure for fibromyalgia." NFRA has consistently built on this premise educationally, financially, and politically in an effort to raise public, medical and government awareness of this debilitating illness.

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Gulf War Syndrome

Anthrax Vaccine Network, Inc.  We are here for three primary reasons: to educate the public about the Anthrax Vaccine Program; to mobilize for political action across the country; and to introduce those who are ill with adverse reactions to the vaccine so that they may provide each other with help and support.

National Gulf War Resource Center is an international coalition of advocates and organizations providing a resource for information, support, and referrals for all those concerned with the complexities of Persian Gulf War issues, especially Gulf War illnesses and those held prisoner or missing in action.

Gulf War Veteran Resource Page has been a presence on the Internet since early 1994, aiding Gulf War veterans in their pursuit of the truth.  Our site is completely database driven and contains an enormous amount of archived content for you to discover.

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Multiple Chemical Sensitivities Syndrome/
Chemical Injury/Environmental Injury

MCS: Health & Environment  Many MCS sufferers improve with treatment and attention to their environments and lifestyles. However, managing MCS can be complex, difficult, and isolating for sufferers without a good support network.  This site is one of many resources that can help you chart your own course to better health, and to feel the support of a community of people who understand your experiences. 
Download their brochurewith
.

MCS-CI-Exile, an unmoderated discussion forum for MCS (multiple chemical sensitivity), TILT (Toxicant-Induced Loss of Tolerance), EI (environmental illness), CI (chemically injured).  Information is exchanged by those wanting to move forward, and is for the benefit of sufferers hoping to acquire help in learning to understand, cope and adjust to MCS, TILT, EI, CI as they relate to their own individual and personal health concerns, as well as the much broader impacts on reciprocal relationships including, but not limited to, familial, social, global, medical/ scientific research/ health care, economic, workplace, educational, political, environmental, advocacy, legal, accommodation/ access, lifestyle and governmental realms.

Multiple Chemical Sensitivity Referral & Resources  A non- profit outreach, support, advocacy site devoted to diagnosis, treatment, accommodation and prevention of Multiple Chemical Sensitivity Disorder.

The Chemical Injury Information Network (CIIN) is a tax-exempt, non-profit, charitable support and advocacy organization run by the chemically injured for the benefit of the chemically injured. It focuses primarily on education, credible research into Multiple Chemical Sensitivities (MCS), and the empowerment of the chemically injured.

Health & Environment Resource Center  Easy to navigate, wide ranging info and links about MCS and related topics.  H&ERC's primary mission is to inform the public on the relationship between environment and health through articles, newsgroups, publications, and one-on-one correspondence

Chemical-Illnet  An Internet community where the chemically ill, their friends, family and loved ones can come to gather information, support, and learn how they can become pro-actively involved in advocating for accommodation and acceptance of this illness. 

North Carolina's Chemical Injury Network Site  A very complete listing of information, links to other groups, and resources.

EPA's Indoor Air Quality Home Page  Learn about Indoor Air Quality from the same folks who did next to nothing about the toxic carpet problem until 26 Attorneys General sued. Actually has some good info.

Green Living (a service of Enviro Link)  A site which has a lot of info on various aspects of and resources for living in a cleaner indoor environment.

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Myalgic Encephalomyelitis/
Chronic Fatigue Syndrome

Wisconsin CFS Association  Serving those with Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS)

DePaul University's ground-breaking, community-based study of Chronic Fatigue Syndrome (CFS), headed by Leonard Jason, DePaul University professor of psychology, explodes the myth that individuals with the condition are largely white, middle-class women who don’t really have a serious malady.

Chris Billinsky's Site  To share information about this much maligned and misunderstood disease syndrome, I have provided links to several CFS information sources, and the text of a letter written to the media in 1996 by the U.S. Assistant Secretary for Health, Dr. Philip R. Lee.

The Chronic Fatigue Syndrome Society for Neuroimmunomodulation Research (CFSsocNIMr) campaigns on behalf of patients with Chronic Fatigue Syndrome (CFS) for progress in the research and development of neuroimmunomodulation (NIM) based treatments and cure.

American Association for Chronic Fatigue Syndrome  The American Association for Chronic Fatigue Syndrome (AACFS) is a non-profit organization of research scientists, physicians, licensed medical healthcare professionals, and other individuals and institutions interested in promoting the stimulation, coordination, and exchange of ideas for CFS research and patient care as well as periodic reviews of current clinical, research and treatment ideas on CFS for the benefit of CFS patients and others.

RESCIND  Homepage of an advocacy organization which pioneered recognition of these overlapping syndromes, and creator of May 12th International Awareness Day in honor of Florence Nightingale.  An informative site with links to many others.

Carol's CFS Place  These pages are intended to give the reader some insight into the disease: what research is going on, what the patient can do for possible treatment, some of the doctors that treat CFS, other places to go for CFS and medical information and even some humor to lighten the burden of this disease.

Massachusetts CFIDS Association website with information on advocacy, health, links and many valuable tools.

The CFIDS Association of America  Our mission is to conquer CFIDS.  Learn more about this modern medical mystery affecting close to one million people.

Listening to CFIDS  Works by People with CFIDS; an amazing insight.

Frank Albrecht's web site "For Parents of Sick and Worn-Out Kids"

The Alison Hunter Memorial Foundation  Established in 1998 through the initiative of the Public Interest Advocacy Centre, and The Public Interest Law Clearing House as a project of the law firm Minter Ellison. KPMG provides pro bono financial services. The Foundation works independently in a spirit of support and cooperation with all researchers, institutions and ME/CFS societies to advance scientific knowledge and medical care.

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Related Illnesses

Lyme Disease Resource Center  The purpose of this website is to share with the larger internet community some of the information and support services the Lyme Disease Resource Center has been offering the Lyme disease community for the past 8 years.

Lyme Disease Network, a non-profit foundation dedicated to public education of the prevention and treatment of Lyme disease and other tick-borne illnesses.

Reflex Sympathetic Dystrophy Syndrome (RSDS) Association of America is a non-profit organization founded to meet the need for awareness of RSD among healthcare professionals, patients and their families, to encourage research into the cause and cure of RSD, and to establish a national databank.  

The American Autoimmune Related Diseases Association is dedicated to the eradication of autoimmune diseases and the alleviation of suffering and the socioeconomic impact of autoimmunity through fostering and facilitating collaboration in the areas of education, research, and patient services in an effective, ethical and efficient manner.  AARDA is the only national organization dedicated to addressing the problem of autoimmunity, the major cause of chronic illness.

TMJ & Facial Pain Center  Dr. Wesley E. Shankland, II, Director. Dr. Shankland has written a very comprehensive book for individuals who suffer with TMJ and related disorders. TMJ: ITS MANY FACES, 2nd Edition, published by Anadem Publishing, has drawn on Dr. Shankland's experience of over 20 years in treating patients from all over North America and around the world.

The TMJ Association is a patient-based advocacy organization whose mission is to provide information to patients, health professionals and the public on temporomandibular (jaw) joint diseases, commonly known as TMJ. The Association's goal is to establish safe and effective means of diagnosis, treatment and prevention of these diseases – ultimately to "change the face of TMJ."

Autism – Present Challenges, Future Needs – Why the Increased Rates? House Committee on Government Reform Hearing, April 6, 2000.

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Chronic Pain

 The Chronic Pain Forum hosts three email based lists. Each list is by subscription only.  We provide a resource and service to those with Chronic Pain from any cause, caregivers and Professionals. 

 The American Pain Foundation, a non-profit information resource and patient advocacy organization serving people with pain.  We represent exclusively the interests of people who suffer from pain and we fill the need for a grassroots, consumer-driven, patient-focused organization promoting better pain management.

Chronic Pain Solutionsa News Guide for those suffering with Chronic Conditions Linking Traditional and Natural Medical Care.

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Complementary/Alternative

 BodymindResources.com  Liam Keever started this site to keep you out of pain.  Liam is a massage therapist and structural body worker with a mission to help and guide all those who are bold enough to begin the adventure of putting their body back together and getting out of pain!

American Association of Naturopathic Physicians  Founded in 1985, AANP is the national professional society representing naturopathic physicians who are licensed or eligible for licensing as primary care providers.  Helps in selecting a naturopathic doctor.

NaturMedia  This site has been online continuously since the spring of 1995 at this same Internet address as a source of reliable, credible information about natural medicine.

Alternative Medicine  In all, our goal is two-fold:  to bring you a number of techniques and approaches that appear to be worth your time to investigate and to discuss with your physician or health-care provider; and to report mainly on wellness and natural approaches to staying healthy and living longer.

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Disability

Winning Your Disability Case with the Help of Co-Workers, Family Members and Friends

Winning Your Social Security Disability Claim: 15 Mistakes You Can Not Afford to Make!

Social Security Disability frequently asked questions

 The Invisible Disabilities Advocate  Do your loved ones have a difficult time understanding your illness, because to them you "look fine"?  IDA's publications help friends and family see the courage and determination it takes to live with a disabling illness, amidst the challenges, frustrations and losses!

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Additional Resources

Drug Interaction Checker  Drug interactions can result in unwanted side effects or prevent a medicine from doing its job. Find out if your medicines interact with each other. Create a list of the products you use. Include prescription medicines, nonprescription medicines, herbs, vitamins, and supplements. We'll also check for interactions with alcohol, food, and tobacco.

One of Sleepnet.com's goals is to link all the sleep information located on the internet. As new, non- commercial sites become available they will be linked here.

The National Sleep Foundation is an independent non-profit organization dedicated to improving public health and safety by achieving public understanding of sleep and sleep disorders, and by supporting public education, sleep-related research, and advocacy.

The Medicine Program  Help with accessing free medications.  Our function, in cooperation with the physician, is to assist patients who may qualify to enroll in one or more of the many patient assistance programs now available. These programs provide prescription medicine free-of-charge to individuals in need, regardless of age, if they meet the sponsor's criteria.

Pharmweb  The first pharmaceutical portal on the Internet has developed into an invaluable directory of information, including a library of archives from over 100 moderated discussion forums.  Look up your medications in this large database.

RX List  Search for information on more than 4,500 popular drugs written in plain English and more than 3,000 in plain Spanish.

WebMD  You can view all your favorite areas on your own personalized WebMD homepage. Just choose your topics of interest and your home page will be customized with up-to-date news, message board posts, reference articles, and convenient access to relevant information centers and Health-E-Tools.

U.S. National Library of Medicine, the world's largest medical library and creator of MEDLINE/PubMed, which provides access to over 11 million MEDLINE citations back to the mid-1960's and additional life science journals. PubMed includes links to many sites providing full text articles and other related resources.  

Medscape  Tens of thousands of full-text, peer-reviewed clinical journal articles.  Rather than restricting content to a list of titles and abstracts of clinical articles, Medscape offers full-text articles from contributing publishers.

ScienceDaily is one of the Internet's leading online magazines and Web portals devoted to science, technology, and medicine. The free, advertising-supported service brings you breaking news about the latest discoveries and hottest research projects in everything from astrophysics to zoology.

At Environmed Research Inc. we are dedicated to helping people find solutions for common health problems. You will find here a rich source of nutritional and environmental information.  Take advantage of the 800 pages of text which describe the most common health problems related to diet, nutrition, allergy and environmental problems.

The National Council Against Health Fraud is a volunteer network of health care professionals working to provide the public with convenient and reliable information about alternative medical claims, products and service.

Health Care Reality Check  A volunteer network of health care professionals working to provide the public with convenient and reliable information about alternative medical claims, products and service.

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Spiritual Support

 Rest Ministries  A nonprofit Christian organization that serves people who live with chronic illness or pain and teaches churches on the many aspects of invisible chronic conditions.

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Most recent revision Tuesday, July 31, 2007