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Dear Friends:
Please find herewith information which may be
of interest to you and others you know. Please feel free to
circulate this information.
Please keep checking our website at
http://www3.sympatico.ca/me-fm.action/ or newsletter 'QUEST' on
developments.
Lydia E. Neilson, President CEO
NATIONAL ME/FM ACTION NETWORK
3836 Carling Avenue
Nepean, Ontario K2K 2Y6 Canada
Tel/Fax: (613) 829-6667
E-mail: ag922@ncf.ca
Web:
http://www3.sympatico.ca/me-fm.action/
NATIONAL ME/FM ACTION NETWORK is proud to announce that
we will be hosting the First International Symposium on the
Parallels between Post-Polio Sequelae (PPS), Myalgic
Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and
Fibromyalgia Syndrome (FMS) on June 15th, 2002, 1:00 -
4:00 P.M., at the Holiday Inn Hotel & Suites Toronto-Markham,
Ontario (approximately 20 minutes drive from Toronto’s Lester B.
Pearson International Airport). We are delighted to feature
two internationally-renowned researchers, Dr. Elizabeth Dowsett,
leading British ME researcher, and Dr. Richard L. Bruno, the
world’s leading expert on Post-Polio Sequelae.
Tickets are $8.00 in advance and
$10.00 at the door. To reserve a seat, please contact Mary Ellen,
Manager, Special Projects, for the National ME/FM Action Network,
P.O. Box 66172, Town Center Postal Outlet, 1355 Kingston Rd.,
Pickering, ON L1V 6P7 - Tel/Fax: (905) 831-4744 - E-Mail: marye@pathcom.com.
Out-of-towners wishing to stay at the Hotel should ask for a reduced
symposium room rate by phoning the hotel toll-free at 1-800-387-3303
or (905) 474-0444. Please book as soon as possible.
There are a few books that you may be interested in.
Hot off the
Press!
CHRONIC FATIGUE SYNDROME: A Biological Approach
Edited by Patrick Englebienne and Kenny De Meirleir, Belgium
The book includes the many recent, biological discoveries that
have helped give a better understanding of the physiology of this
disease, and improve the specificity of its diagnosis by laboratory
tests. It summarizes the most recent advances made in this field and
discusses insights that support ME/CFS as a distinct and specific
physical disease. The book includes advances in virology,
bacteriology, immunology, protein chemistry and biochemistry,
physiology and metabolism, clinical biology, pharmacology and
epidemiology. It describes new insights and implications for the
diagnosis and treatment. The authors are donating all royalties to
research in ME/CFS. Cost US$99.95, 10% discount (US$89.96) if paid
by credit card. Please also give your physician a copy of this
info.
K. De Meirleir, MD, PhD, is a member of the Canadian
Expert Consensus Panel for the Canadian ME/CFS Clinical Definition
Diagnostic & Treatment Protocols and attended the peer-review in
Toronto in March 2001 hosted by the National ME/FM Action Network in
March 2001. He has treated approximately 5,000 ME/CFS patients and
has approximately 300 scientific publications to his credit. Dr. De
Meirleir is one of the foremost international researchers in ME/CFS,
and his research on the biochemical dysregulation of an antiviral
defense pathway and the low molecular weight RNase L may lead to a
blood marker for ME/CFS.
FACES OF CFS
by Dr. David S. Bell
Through case
histories of patients, Dr. Bell, a leading researcher in ME/CFS and
FMS and the author of numerous research papers and books on ME/CFS
and FMS, discusses this complex disease. This book has just gone on
a final sale of $5.00 U.S. each, plus a $2.00 U.S. charge for
shipping out of the U.S. The book originally sold for $25.00 -
Please send: Money orders in U.S. Funds to: DS BELL, P.O. BOX 335,
LYNDONVILLE, NY 14098, U.S.A.
THE POLIO PARADOX: UNCOVERING THE HIDDEN HISTORY OF POLIO TO
UNDERSTAND & TREAT “POST-POLIO SYNDROME” AND CHRONIC FATIGUE
by Dr. Richard L. Bruno.
This book will be published by Warner Books in June 2002, and
signed copies will be available for purchase at the First
International Symposium on the Parallels between Post-Polio Sequelae
(PPS), Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS)
and Fibromyalgia Syndrome (FMS) on June 15, 2002 hosted by the
National ME/FM Action Network. Please E-mail questions to Dr. Bruno
at <PolioParadox@aol.com>
You may recall that about a year ago, we helped Dr. Richard
Bruno with a survey he wanted to do with the ME/CFS and FM
community. The questions on this survey were designed with Dr. Bell
who is well-known in the ME/CFS community.
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